I have never blogged before, nor did I ever want too. But after reading so many websites and talking to others with EDS, I feel like this is more therapeutic for me.
So here it goes ... my life story with EDS.
My name is Amanda. I was born in Virginia and still reside here after attending school in North Carolina. I had a very active lifestyle as a child. I was a fabulous cheerleader and gymnast in high school and college and even won All-American Cheerleader my sophomore year and was able to attend the Macy's Thanksgiving Day Parade.
I won the cheering competition at Clemons University and I could jump as high as a kite while doing a 'russian' with my legs hyperextended. My back tucks and handsprings were fast, smooth and perfect. I was amazing. But now I know why, I had EDS Severe Hypermobility and didn't know it. It made me an excellent cheerleader, but who knew the pain I would have later in life...
It all started when at age 2 I was diagnosed with SVT (Supraventricular Tachycardia) and was on medicine my entire life to help with the fast heart rate and keep my potassium levels in check. Again, had no idea where this came from or why it effected me...
Then around age 8 my knees started bothering me all the time. I would cry at night and I remember my parents rubbing my knees, applying heat/ice and giving medication to make the pain go away. Everyone said they were 'growing pains', but now we know they weren't...
I learned to live with my pain in my knees and SVT and knew my limitations. I wasn't very different from others, but always felt I had 'more problems' then I needed to have...
